For information on how to submit samples to the NINDS Repository please view the document below entitled "Becoming a Submitter to the NINDS Repository"; here you will find details regarding the application process, the kinds of samples accepted, and suggested language for patient informed consents.

Becoming a Submitter to the NINDS Repository 1401-66 Rev C   

Neither NIH/NINDS nor Coriell make a profit from the distribution of samples from the NINDS Repository.

Forms

• NINDS Repository Investigator Tracking Data Form 1401-50 Rev R  
• NINDS Repository Parkinsonism Investigator Approval and Tracking Data: Supplemental Data  
• NINDS Repository Collaborator Tracking Data Form 1401-51 Rev H  
• NINDS Repository Stem Cell Tracking Data Form 1401-82 Rev A  
• NINDS Repository Stem Cell Submission Form 1401-67 Rev B  

Shipping Instructions

• NINDS Repository Blood Collection
  - Domestic Shipping Instructions  
  - International Shipping Instructions   

• NINDS Fibroblast Collection
  - Skin Biopsy Shipping Instructions  
  

• NINDS Repository PDBP Collection
  - Domestic Shipping Instructions  
  

• NINDS Repository PREDICT-HD Collection
  - Domestic Shipping Instructions  
  - International Shipping Instructions   

• NINDS Repository BioFIND Collection
  - Visit 1 Shipping Instructions  
  - Visit 2 Shipping Instructions   

• NINDS Repository FTLD-MAPT Collection
  - Ambient Shipping Instructions - Domestic  
  - Ambient Shipping Instructions - International   
  - Frozen Shipping Instructions - Domestic   
  - Frozen Shipping Instructions - International   
  

Guidelines and Policies

• Standard Operating Procedure for Destruction/Removal of Samples from the NINDS Repository  
• How to Submit Data for NINDS Repository Control Subjects  
• HIPAA Privacy Rule and Its Impact on Research  (external Link)
• NIH Policy on Direct Cost Charges for IRB Review  (external Link)
• Tools for Collaborations That Involve Data Sharing  (external Link)
• NINDS Submitter Guide 1401-71 Rev E    [Feedback is welcome]

• Privacy Rule Frequently Asked Questions
• Research Repositories, Databases, and the HIPAA Privacy Rule (NIH external link)

• General Description of the Coriell Cell Repositories
• NINDS List of Submitters