Mission and Organization

Working together with the Coriell Institute for Medical Research, the Orphan Disease Center (www.orphandiseasecenter.med.upenn.edu) and the LouLou Foundation have established a secure, centralized repository to store and distribute quality-controlled induced pluripotent stem cells (or iPSCs) representing CDKL5 deficiency disorder, paired with the isogenic control to give research scientists access to this resource of biomaterials, and to support the discovery of therapeutics that will slow or prevent CDKL5 deficiency disorder (CDD). Additional resources such as antibodies will also be available in this catalog in the near future.

Organization and Contact Information

Orphan Disease Center

Daniel Lavery, PhD – Director,

CDKL5 Program of Excellence*

Email: dlavery@upenn.edu

*The CDKL5 Program of Excellence is in Partnership with the LouLou Foundation

LouLou Foundation

Daniel Lavery, PhD – Chief Scientific Officer



Email: customerservice@coriell.org

Phone: (800) 752-3805

Coriell Staff

Jose Santana – Project Lead

Email: jsantana@coriell.org

Phone: (856) 757-4849

General Inquiries

Email: ODC-CDKL5@coriell.org

Phone: (800) 752-3805